Wednesday, March 12, 2008

Strange Old Day


Its been a strange old day which started with the shuttle bus arriving early, it came while we were still in the shower, we dashed and hobbled as quick as we could too meet our awaiting carriage. The bus was full and we expected to be pelted by rotten tomatoes and walkers for keeping everyone waiting.
Sharon's 24 hour urine leaked in all the rushing around and we had to drain the plastic bag back into the container. Hope this doesn`t affect the results but I know it spoilt my sandwiches.
The big appointment of the day was with a Cardiologist Dr Gheorghiade he was a very chilled friendly but thorough Dr. Quite a rarity for a cardiologist, as they are usually type A personality's who don`t give you a minute to miss a beat before rushing off to the cath lab. He examined Sharon and her previous cardiac tests and gave us the green light to advance further. He paged Dr Burt and left so Sharon answered the return call much to everyones amusement. At least she didn`t say John C lincoln endo that would have been confusing. The weather has warmed up a fraction with some sunshine not running for the shorts yet.

3 comments:

Anonymous said...

I see it is a bit chillier there than here in Phoenix. It's supposed to get up to 85 degrees tomorrow. Your Mom is going to hate it. I called her the other day to check in and will call again on Sat. Next week I can take her to the grocery store. Sounds like everything is going as planned for you except the urine problem! Take Care. Mary

Anonymous said...

God its like listening to the carers at work listening to you and your urine difficulties!!!!!

Spoke with mum she is ok. Boys are being good. Aaron doing all his homework wish connor was as good. he will do anything to get out of it.

Loving reading tyhe blogg girls at work all check it out too i keep telling them to leave a blog but noone has yet.

Debsxxxxxxxxxxxxxxx

Anonymous said...

i've been reading about your adventures in chicago and see you are taking everything inyour stride always a drama!!!

wolves are rubbish as usual. keep up the witty comments make my day.

christopherx

About Me

I work as an RN in Endoscopy at John C. Lincoln Hospital and in 2006 I was diagnosed with Systemic Scleroderma, a condition that has no known treatment and was always symptom management. After doing some research, I discovered Dr. Burt, a doctor in Chicago who is pioneering the use of stem cell transplant to treat Scleroderma. This process uses my own stem cells - taken from me, cleaned, and then re-introduced back into my body, so that it will no longer recognize the Scleroderma. This is a very basic summary of a complex procedure. Systemic Scleroderma has a very poor prognosis and with my symptoms worsening I feel that this is my only chance at getting treatment and reversing my symptoms. I have worked for 6 years at JCL, Deer Valley and hope to continue there with excellence. I wish to continue be a good mother to my 2 boys, a good wife to my wonderful husband, and maybe one day be a good grandmother.