Sunday, March 2, 2008

Now we are bloggers


Well, we never thought we would have a blog well thanks to lisa shazzas sclero twin a computer wiz. Cheers Lisa, time to start blogging Eh!! We'll keep you up to date with our adventures!! Just awaiting mom to get here from the UK to introduce her to the ways of life in the US before we embark on our Chicago adventures!! We would love to here from you guys in the US and UK . We would like to thank you all for your continued help and support. Thankyou so much from the bottom of our hearts.

9 comments:

Lisa Volz said...

Welcome to blogging my friends! You have lots of things to share and quite an adventure ahead. I look forward to reading more...

Anonymous said...

The blog is now fixed so anyone can post comments, sorry some people couldn`t leave messages for us,we are still getting use to this technical stuff.

Anonymous said...

I`M AMAZED HOW FAR YOU HAVE GONE OVER LAST FEW WEEKS, FROM STILL NEEDED HELP YORSELF TO HELP OTHERS .WHAT A GREAT LEAP OF COURAGE AND HOPE YOU ARE. YOU ARE OUR HERO. WE`LL SUPPORT YOU ALL THE WAY.
STAN AND FAMILY

Anonymous said...

The reinforcements have arrived well Sharon`s Mom Pat has, Pat is going to look after our lads while we are away in Chicago, Sharon was late picking her up from the airport unfortunately. Sharon came across her at the lost and found looking through the telephone directory for us, She ended up calling England and waking up Wendy Sharon's sister for the number. We appreciate her sacrifice of traveling so far on her own to come to our aid and staying at our home while we are away taking care of things. Friends feel free to help Pat as she doesn't drive and the company I`m sure would be helpful.

Anonymous said...

Sharon and Craig, Our thoughts and prayers are with you both as you head out on this journey.We'll be available to help with the boys ,please let us know if there is anything we can do.
Godspeed, Jackie and Kieron

Anonymous said...

God bless you on your next step in life. You are truely special people and are thoughts are with you in the weeks ahead.
Bessie and Jason

Anonymous said...

Back here in good olde England we are sending you all our love and support. We are thinking about you constantly and if there is anything we can do , just let us know. We will keep in contact via your blog and e-mail. Give our love to the boys and we are sending positive thoughts for the 16th. It will be a good day for everyone as it is Richy's birthday and of course Sharon's and good things happen on Birthdays.
Love to you all
The Brits

Anonymous said...

Hi porters, can i just tell everyone it was 1.50 am, when mom rang me!!! I'm like 'Its thousands of miles away, what can i do' ha ha! At least i knew she landed safely! Bless!! I just want to say we are with you all the way, my one wish would be to actually be with you, hug you and tell you it will be ok! I wish you all the luck in the world and will be thinking of you. Love Wend xx

maryc. said...

Good luck, guys. Hope the weather is nice in Chicago. Don't forget to try the deep-dish pizza! I'll check in on Mom for you. Love ya!

About Me

I work as an RN in Endoscopy at John C. Lincoln Hospital and in 2006 I was diagnosed with Systemic Scleroderma, a condition that has no known treatment and was always symptom management. After doing some research, I discovered Dr. Burt, a doctor in Chicago who is pioneering the use of stem cell transplant to treat Scleroderma. This process uses my own stem cells - taken from me, cleaned, and then re-introduced back into my body, so that it will no longer recognize the Scleroderma. This is a very basic summary of a complex procedure. Systemic Scleroderma has a very poor prognosis and with my symptoms worsening I feel that this is my only chance at getting treatment and reversing my symptoms. I have worked for 6 years at JCL, Deer Valley and hope to continue there with excellence. I wish to continue be a good mother to my 2 boys, a good wife to my wonderful husband, and maybe one day be a good grandmother.