Thursday, March 6, 2008

Sharon the News Star




Channel 12 News filmed Sharon at work highlighting the condition and treatment it aired at 10pm on Thursday 6th March. Lets hope this rare condition and Sharons Story helps others get the treatment they so need.
Posted by at

2 comments:

fletchers said...

Just found your blog and updated ourselves with your latest news. We had no idea! All the best with your treatment - lots of love Karen, Spence & co.

March 16, 2008 at 8:07 AM
Anonymous said...

HI,
SORRY WE MISSED YOUR BIRTHDAY! HOPE YOU DID SOMETHING GREAT! WE MISS YOU AND LOVE YOU!
YOUR ENDO TEAM

March 17, 2008 at 10:14 AM

Post a Comment

Subscribe to: Post Comments (Atom)

About Me

I work as an RN in Endoscopy at John C. Lincoln Hospital and in 2006 I was diagnosed with Systemic Scleroderma, a condition that has no known treatment and was always symptom management. After doing some research, I discovered Dr. Burt, a doctor in Chicago who is pioneering the use of stem cell transplant to treat Scleroderma. This process uses my own stem cells - taken from me, cleaned, and then re-introduced back into my body, so that it will no longer recognize the Scleroderma. This is a very basic summary of a complex procedure. Systemic Scleroderma has a very poor prognosis and with my symptoms worsening I feel that this is my only chance at getting treatment and reversing my symptoms. I have worked for 6 years at JCL, Deer Valley and hope to continue there with excellence. I wish to continue be a good mother to my 2 boys, a good wife to my wonderful husband, and maybe one day be a good grandmother.