Monday, August 11, 2008

Long time no hear!!







Hi everyone,
Its amazing how time flies when your having chemo!! I had my sixth dose

of chemo last week in Chicago, it turned out to be a very enjoyable week in many ways. Firstly I met up with Dr Burt and Kristin and they were pleasantly surprised by how well I am and look, Yes, astonishingly Chemo / Steroids have helped greatly, following March I had some quality time with my mom, which was great, she looked after us all very well. Thanks mum!!!!! I began physical therapy 3 x a week to help with my legs and hand therapy so I utilized my time off work by having rest coupled with therapy. My mobility greatly improved and my strength came back, Kieran would say don't mess with mom she's on steroids!! I actually did not realize how bad I was until I started to feel better, little things like walking from my bedroom to the living room did not feel like I had done a marathon anymore!!
Mom left at the end of May and I returned to work in June something that I did not think I'd be doing. Craig "my rock" started to sleep a little better as he saw me improving and not struggling, I realize that it was hard for him to see me like that, but he continues to be supportive and loving husband. Thanks Craig. xxx
I digress, oh yes we went to Chicago to have my sixth dose of chemo! yuk!! We took the boys with us they enjoyed visiting the city, Chicago certainly comes to life in the summer!! wow its totally different than the winter, now we know why people live there. We did sightseeing scaled the Sears tower by elevator definitely not for those with a fear of heights, Aaron enjoyed swimming in Lake Michigan and the long walks around the city, we also did the double decker bus tours and museum's and of course threw in a couple of hospital visits. Dr Burt was pleased with how I looked and how some test results came out and he gave me some hope for the stem cell treatment as I do not have to meet markers based on deterioration as was first thought ,he expressed that now I have completed the chemo any deterioration in my condition would lead to crossover to stem cell transplant!!! wow was this was music to our ears, we are so overjoyed that I do not have to get so bad to get the treatment I need. Chemo is managing me symptomatically but has it cured me, no, Stem Cell is my cure!! So the trip to Chicago went well !!
Thank you to everyone for your kind wishes and concerns, also thanks to everyone in the UK who contributed to support shazza across the pond, Deb, Wendy, Angie, Thank you so much for your time and effort, I am very appreciative of your continued fantastic support. Cheers !!!
I promise to be a better blogger or even get Craig to blog more often.
A last note to Lisa and Victoria who had stem cell transplant ,continued well wishes to both of them they both have had there struggles it has not been easy but they are both on the way to recovery, I admire there strength and determination.
Once again thank you all for your continued concern and well wishes.
Thanks Sharon.

About Me

I work as an RN in Endoscopy at John C. Lincoln Hospital and in 2006 I was diagnosed with Systemic Scleroderma, a condition that has no known treatment and was always symptom management. After doing some research, I discovered Dr. Burt, a doctor in Chicago who is pioneering the use of stem cell transplant to treat Scleroderma. This process uses my own stem cells - taken from me, cleaned, and then re-introduced back into my body, so that it will no longer recognize the Scleroderma. This is a very basic summary of a complex procedure. Systemic Scleroderma has a very poor prognosis and with my symptoms worsening I feel that this is my only chance at getting treatment and reversing my symptoms. I have worked for 6 years at JCL, Deer Valley and hope to continue there with excellence. I wish to continue be a good mother to my 2 boys, a good wife to my wonderful husband, and maybe one day be a good grandmother.