Thursday, December 4, 2008

Hair Today Gone Tomorrow


Hi,
Day 9 is here and the white cell count is at 0.2 up from 0.1 a move in the right direction but a long way from where we need to be safe. Dr Burt checked under the microscope blood smears and they showed white cells too immature to count. They are developing and our immanent arrival of the new immune system is in site.

Finally today couldn’t stand the hair issue any longer as it was getting annoying as it was falling out in clumps and getting everywhere and itching so bad. The Donald Trump comb over has been replaced by the Sinead o Conner look. With the platelet counts being so low shaving was out the question so Craig cut it with scissors and then trimmed the rest with clippers. It feels much better now and my collection of hats will be put to full use.

5 comments:

Anonymous said...

glad to hear all the updates. keep up the good work. always in my thoughts. sarah and connor send their love. 1 also want to say how proud i am of what pat has done for you. she is a diamond. but we want her back when you are better need a nice sunday dinner!!!

your brother is well but driving us mad with his usual rubbish. debxxx

Anonymous said...

Hi Sharon and Craig,
Sorry we have not been in touch 4 a few days as we have been up in Glasgow at Emma's graduation. She is now Emma Thomas M.A (Hons), M.Litt. Not sure where she has got all her brains from but Paul is claiming them. We are so glad that things are going well even if the progress is a little on the slow side. Mom used to say if something is worth having, its worth waiting for.I'm sure the great end result will justify the wait.By the way Craig love the new hairstyle.
Take care,
All our love,
The Brits

Anonymous said...

Congratulations to Emma on graduating time fly's so quickly. It only seems like 5mins ago Sue Dalley and me were in Glasgow staying with you for that conference. Hows Susie doing?
craig

Sharon said...

Hi Debs, Sending all our love to you guys we definately agree Mom has been a true gem. Day in and day out managing our home and boys she has done great.

Anonymous said...

Sharon,
Sorry to hear about your hair, Sandy said to tell you being bald is awesome, you don't have bad hair days. We are thinking of you, Sandy said to consider this being in labor, you don't know when the baby will come but it will get here. Sandy had the marinol high yesterday and they took her off of it. It don't sound nearly as much fun as smoking it did in the old days. Sending good thoughts your way, Sandy and Dale

About Me

I work as an RN in Endoscopy at John C. Lincoln Hospital and in 2006 I was diagnosed with Systemic Scleroderma, a condition that has no known treatment and was always symptom management. After doing some research, I discovered Dr. Burt, a doctor in Chicago who is pioneering the use of stem cell transplant to treat Scleroderma. This process uses my own stem cells - taken from me, cleaned, and then re-introduced back into my body, so that it will no longer recognize the Scleroderma. This is a very basic summary of a complex procedure. Systemic Scleroderma has a very poor prognosis and with my symptoms worsening I feel that this is my only chance at getting treatment and reversing my symptoms. I have worked for 6 years at JCL, Deer Valley and hope to continue there with excellence. I wish to continue be a good mother to my 2 boys, a good wife to my wonderful husband, and maybe one day be a good grandmother.