Monday, December 8, 2008

All Quiet on the White Cell Front



Hiya,
Day 13 post transplant and 18 of Hospitalisation but whose counting when you are having fun ! There was a possibility of maybe getting out of the Bone Marrow Transplant Unit but my white cell count dropped from 2 yesterday to 1.4 but they are engrafting at last but my platelets are still 35 and low so it has been postponed for now. For the first time Dr Burt has allowed me to visit the cafeteria with a mask on. Craig suggests I cut a hole for a straw to go through it so I can enjoy a beverage. We had a lesson today about diet and foods post transplant with others from the unit. Sandy who is post transplant with scleroderma is feeling alot better today so thats good news.
My appetite is great and I feel stronger. Looking forward to returning to Craig's bachelor pad at the hotel eventually and cramping his style.
All the best Sharon and Craig

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About Me

I work as an RN in Endoscopy at John C. Lincoln Hospital and in 2006 I was diagnosed with Systemic Scleroderma, a condition that has no known treatment and was always symptom management. After doing some research, I discovered Dr. Burt, a doctor in Chicago who is pioneering the use of stem cell transplant to treat Scleroderma. This process uses my own stem cells - taken from me, cleaned, and then re-introduced back into my body, so that it will no longer recognize the Scleroderma. This is a very basic summary of a complex procedure. Systemic Scleroderma has a very poor prognosis and with my symptoms worsening I feel that this is my only chance at getting treatment and reversing my symptoms. I have worked for 6 years at JCL, Deer Valley and hope to continue there with excellence. I wish to continue be a good mother to my 2 boys, a good wife to my wonderful husband, and maybe one day be a good grandmother.