Tuesday, December 16, 2008

Aaron`s Birthday

Aaron is 11 today and he want`s us home and we wish we were there. We continue to tread water at the hotel near the Northwestern. Sharon`s white cell count yesterday was 1.7 with her neutrophiles just above neutropenic level. We had to go to the hospital for stat labs this morning as they were considering readmitting Sharon back to the BMT unit. The count was 2.1 today but they won`t take the line out. We have to go again tomorrow and see what they are and what happens next?
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3 comments:

Anonymous said...

We pray that Sharon's counts will get where they need to be so you can get back to your boys. Thanks for your thoughts for us, Sandy and Dale

December 16, 2008 at 5:15 PM
Anonymous said...

I miss you and think of you two daily-after this is all done, look forward to every holiday and birthday together. Wishing you and yours a Very Merry Holiday and Healthy New Year!! Love and Kisses to you both, Pat Baldenegro

December 17, 2008 at 12:14 PM
Anonymous said...

I am not sure if my message get thru but I hope so-take care of each other! Pat Bal

December 17, 2008 at 12:15 PM

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About Me

I work as an RN in Endoscopy at John C. Lincoln Hospital and in 2006 I was diagnosed with Systemic Scleroderma, a condition that has no known treatment and was always symptom management. After doing some research, I discovered Dr. Burt, a doctor in Chicago who is pioneering the use of stem cell transplant to treat Scleroderma. This process uses my own stem cells - taken from me, cleaned, and then re-introduced back into my body, so that it will no longer recognize the Scleroderma. This is a very basic summary of a complex procedure. Systemic Scleroderma has a very poor prognosis and with my symptoms worsening I feel that this is my only chance at getting treatment and reversing my symptoms. I have worked for 6 years at JCL, Deer Valley and hope to continue there with excellence. I wish to continue be a good mother to my 2 boys, a good wife to my wonderful husband, and maybe one day be a good grandmother.