Friday, November 28, 2008

Long Days of Isolation

Hope everyone had a good thanksgiving thanks to Sue and Gille for helping Mom and the Boys participate in the holiday festivities. We felt apart of it as we could see and talk to them on the web cams on our lap top from the hospital isolation room.

Well I am still Neutropenic which means I am susceptible to infection but each day is getting easier my glands have gone down and the nausea is easing with the new anti emetic and have started eating more. Generalised weakness and lethargy is an issue but I am still allowed to walk with a mask and gloves three times a day in circuits around the BMT unit. Another patient coughed when we were walking and we both held our breath and walked in the opposite direction as fast as we could manage. We both have a germ paranoia cleaning the room down regularly with sani wipes and constantly washing our hands. The days are long but try and keep busy and prevent the boredom from becoming too much.
Cheers Sharon and Craig

4 comments:

Anonymous said...

Hi Sharon & Craig,

I read your blog and could not remember my password and every time I tried to reregister it kicked me out! I am glad to hear you are doing well! I am sure things are not quite as great as you want everyone to believe because you are truly a wonderful person. You never complain about anything. When God put you on this earth, we were blessed. Keep your positive attitude and all will be well.
I am glad your mom had somewhere to go for thanksgiving even though I know the Brits don't celebrate it.
Nothing really new at work, pretty much the same. I am sure we are warmer here than in Chicago.
I hope you get this! I just get frustrated trying to get into that blog but I love reading it to keep up on you.
Love
Devin

Anonymous said...

Hi Sharon and Craig!

I'm so happy to hear that you are doing better even though Isolation is a hard thing. I had a room within a room for awhile and I don't think the nurses wanted to come into my room too much because they had to completely gown up before entering; therefore, I really felt isolated. Sharon, your so strong that I know you'll be okay. Keep holding your breath and washing your hands though!! I caught a virus the night I got out of the hospital and had to go back into the hospital for another week! My best to both of you, Victoria Chavez

Anonymous said...

Hi Sharon and Craig!

I'm so happy to hear that you are doing better even though Isolation is a hard thing. I had a room within a room for awhile and I don't think the nurses wanted to come into my room too much because they had to completely gown up before entering; therefore, I really felt isolated. Sharon, your so strong that I know you'll be okay. Keep holding your breath and washing your hands though!! I caught a virus the night I got out of the hospital and had to go back into the hospital for another week! My best to both of you, Victoria Chavez

Anonymous said...

Hi Sharon and Craig,

I'm so glad to hear that you're doing better Sharon, but keep holding your breath and washing your hands. You can never be too safe. I am forever grateful for your help in me getting my transplant. Without all of the documents that Craig sent me I don't think I would have won my appeal with my medical insurance company. I hope everything continues to go well and I'll see you on the other side!

Love,
Victoria

About Me

I work as an RN in Endoscopy at John C. Lincoln Hospital and in 2006 I was diagnosed with Systemic Scleroderma, a condition that has no known treatment and was always symptom management. After doing some research, I discovered Dr. Burt, a doctor in Chicago who is pioneering the use of stem cell transplant to treat Scleroderma. This process uses my own stem cells - taken from me, cleaned, and then re-introduced back into my body, so that it will no longer recognize the Scleroderma. This is a very basic summary of a complex procedure. Systemic Scleroderma has a very poor prognosis and with my symptoms worsening I feel that this is my only chance at getting treatment and reversing my symptoms. I have worked for 6 years at JCL, Deer Valley and hope to continue there with excellence. I wish to continue be a good mother to my 2 boys, a good wife to my wonderful husband, and maybe one day be a good grandmother.